Tag: Social Services

Round and Round We Go…

This is not the accessible rooms post I promised, I’m working on it but somehow when I sat down to write it, this happened instead. Thank you for all the comments on my last post, it’s comforting and encouraging to know that I’m not the only experiencing what I’m going through.

Smiley face, thumbs up!

The main reason I’m writing this is because I’m stuck in a loop, a loop that I can’t get out of and I wondered if any of you readers out there have successfully navigated the system enough to give me advice? I have been on the phone all morning to DWP enquiring about Severe Disability Premium benefit. I was advised by the support service I contacted to help me find work that I should have this. I’d never heard of it, have you?

Woman with hands up, looking confused.

Apparently if you have certain needs and are receiving certain benefits you are entitled to this benefit also. After speaking to the DWP though I was told that I’m not entitled because I have savings over £6,000 and I live with my parent’s who aren’t on any benefits.

All this is ok as far as it goes but I was also advised by my support service that because of my needs, working full time would probably impact negatively on my benefits and I could be expected to pay for the entirety of my care package, the care package that still hasn’t been agreed on and no progress seems to have happened since December!

Please don’t get the wrong idea I want to pay for myself, I don’t want to be a burden on society. My plan was and still is to work but how can I when society seems designed to have me sitting at home, wilting from bordom? I know people with care needs do work and have care packages that give them choice and freedom. What I can’t work out is how? I’m on a roundabout that has been going around and around the same issues continuously for five years and I’m just not getting anywhere! The person I spoke to at DWP also pointed out that now I’m volunteering for two hours a week I have to fill in a form whenever I start any work paid or unpaid.

Black and white roundabout.

I’m helping to create an access map of the Jewellery Quarter in Birmingham so that access to the many museum’s and heritage sites of this area of more accessible for disabled people. Currently it’s just information on the access that’s already available but the hope is that the museums will get involved in improving there access so that more people can access these interesting places.

Many hands in a circle.

I appreciate any thoughts/comments that you have. My post on accessible rooms will hopefully be up next week.

Should I continue writing about my life or just stick to my ideas and reviews? Let me know here.

Categories: Disability Tags: Tags: , ,

Nine Months on…

Photo of Me and Lee Rigby after his show in Solihull

You don’t have to be a rocket scientist to work out that my first post was written in March and it is now December! No I didn’t have a baby but life did get in the way!

My original plan was to get this blog up and running in time to write up my impressions of Naidex. Naidex is one of, if not the biggest disability show of the year, showcasing products, services, advice and a healthy dose of inspiration for disabled people. Obviously this didn’t happen and the main reason is that I had to learn how to fix wordpress before I could use it, alongside ‘requesting’ an increase in my Direct Payments from Social Services. Many of you know how relaxing that is! I have managed to have some fun along the way and thought I would give you a quick summary of what I’ve been up to over the past months.

Smart Independence

If you can’t find a product that meets your needs then there is help out there. We all know disability equipment is expensive and a company called Remap will adapt what you already have or in some circumstances, create a new solution for you. I contacted them to help me adapt my standing chair so that I could transfer into it more easily. Also, on the subject of access, I had smart lighting and heating installed along with a Gerberit wash and dry toilet in my flat. These things will help me be more comfortable and independent in my own home.

Cars and Wheelchairs

This year was also the year that my Motability car lease was up so I was kept busy researching car models that would fit me and my life in it for the next three years. I eventually chose a Fiat Doblo, passenger upfront conversion. I also received my new TDX SP2 wheelchair from Birmingham Wheelchair Services. I now have two working power chairs, a month ago I didn’t have any as my privately brought, Powerchair, decided it needed repairing. In my experience support and equipment are like buses. You wait ages hoping for an appointment and or a piece of equipment and then everything happens at once! I’m not complaining, it feels great to know I now have a back up chair should things go pear shaped. I’d love to hear of your own experiences.

Theatre fun

I visit my local theatre, Birmingham Hippodrome, at least twice a month. I love going to the theatre, it’s accessible and fun. Look out for more posts about my theatre adventures 🙂 I’ve seen a lot of productions in the past nine months including Kinky Boots and Hamilton.

So…

As you see it’s been a busy time. I’m planning on updating regularly from now on. I have my OT assessment on the 10th December in connection with my Direct Payment budget request. Wish me luck!

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