Category: Disability

My Suspected COVID-19 Experience

This took longer to write than I thought it would. The idea was proposed to me by Disability Horizons magazine, I hope people find it interesting. It was pointed out to me when I submitted this to the magazine that I never actually received a positive diagnosis of COVID-19. I believe that is what it was but because testing was not widely available then, I’ll never know for sure.

My Experience

I live with my parents and brother. Back in April, I believe we all caught Covid-19, but our experiences of being ill were different.

Thankfully, none of us had it seriously enough to need hospital attention, but the road to recovery has been slow, particularly for me.

I’m disabled and have cerebral palsy, but I don’t think this makes me no more vulnerable to the virus than an able-bodied person. I’m probably as fit as any other 34-year-old who doesn’t exercise regularly.

Having watched my brother and mother become ill first, I knew it was only a matter of time before I caught it as my parents are my main caregivers at the moment.

My brother and parents’ symptoms

My brother and dad had what can only be described as ‘typical’ symptoms of Covid-19 – a high temperature and cough. How they felt matched closely with what we were being told in the news, so we assume they had the virus.

At the time, tests weren’t even widely available for NHS staff, so there was little chance of us being able to get tested. I would like to get an anti-body test, once they become available, to be sure that’s what we had. But I’m pretty convinced as it is.

Recovery time

The quickest to recover was my brother, who felt ill for about three weeks. Friends with family members who have had confirmed Covid have said they experienced a horrible week, perhaps 10 days.

For me, it was two months from catching the virus before I started feeling close to normal again.

Back in April, the information available about how long we might all be ill suggested that we should’ve begun feeling normal towards the end of my second week.

But, as time went on, more details came out and the times seemed to vary. One article I read described someone having what he called prolonged Covid-19. They were ill for three months.

Pain

My first symptom of possible Covid-19 was pain. I assumed it would be sweating because there was so much talk of a high temperature.

It initially made me question whether I actually had the virus. But with my brother and dad having had what seemed so like Covid-19, surely it couldn’t have been anything else? 

I had what I can only assume was nerve pain. I say this because every muscle and joint in my body ached to the point where I couldn’t cope with sitting up as my hip joints were the worst. It was unbearable.

Pain killers didn’t touch it, but there would be random moments where suddenly all pain and discomfort would disappear, only to reappear again sometime later.

Temperature and cough

I didn’t really have a temperature, as has been talked about so much. I woke up sweating a few times in the night, but my temperature was stable.

I instead felt cold most of the time, and generally off-balance, which wasn’t fun. I also didn’t have any breathing difficulties or indeed a cough.

Confusion and rambling

Being confused and disorientated is not something I have experienced before, so this was new territory.

One second I would be convinced I had to do something, but the next I couldn’t remember what it was at all.

I tend to ramble anyway – why use one word when you can use 10?! But, apparently, there were times when I didn’t make much sense at all.

I was also aware that I wasn’t thinking as fast or as clearly as I normally do, right up until a few weeks ago. Thankfully, I now feel like myself again now.

Tiredness

Together with the other symptoms, I didn’t know what was going on half the time and, despite sleeping a lot, I was constantly exhausted.

I have so much sympathy for people who suffer from fatigue after experiencing what I did.

I’d be sitting or lying down, either watching TV or listening to an audiobook, when my body and brain would suddenly want to sleep. Even worse, if I didn’t get my head down straight away, I would go dizzy and experience headaches.

The tiredness lasted the longest, about 15 weeks in total. Even when all the other symptoms had disappeared, I couldn’t actually concentrate to read or do anything without needing to go to bed soon after. I couldn’t look at my phone or laptop without getting an instant headache.

Lack of taste and smell

Not being able to taste or smell anything is now a recognised symptom of Covid-19, but it wasn’t at the time my family was ill, so that threw another curveball.

For me, the virus caused the weirdest sensation. It wasn’t like when you have a cold and you can’t taste anything, or only taste the catarrh in your throat.

Everything tasted like dust. There was no texture to food either. Everything I put in my mouth could have been the same food.

I suppose at least it didn’t taste horrible, but trying to eat with no sensory feedback was hard. The lack of smell was easier to cope with as I’d experienced that before.

It was also weird when these senses suddenly came back. I was actually overwhelmed for the first two or three days afterwards as everything was suddenly different.

Nausea

This was the worst symptom. I suffer from nausea anyway, but it seems as though this virus had taken it to a new level.

As mentioned earlier, I had no breathing difficulties and I didn’t really have a cough. But I do believe that this virus, assuming it was Covid-19, attacked my digestive system.

I felt like somebody had turned me inside out. If I didn’t eat, I felt ill, and if I eat more than a few mouthfuls, I was sick. It was a delicate balance that I’d mostly figured out by the beginning of week two.

The rest of my family stopped eating altogether for around two days, and then felt better. My nausea lasted about six weeks.

I’ll probably never know if my theory is correct, but it was disconcerting to have an atypical experience when every day the news and NHS were discussing what to expect. My mum’s symptoms also echoed mine more closely too, so it wasn’t just me.

I hope reading this has been interesting and useful in some way. I’m so grateful that none of my family had to go into hospital.

With lockdown relaxing, I just hope people will be sensible so that everyone can get back to ‘normal’ and leave their homes without worrying about catching this awful virus.

I’ve been very lucky, but I never want to feel like that again. Stay safe everyone.

My next post will be about the importance of choice and control and how I’m still having to fight to achieve this! So much in fact that I’ve started a new twitter hashtag, #DirectPaymentHeadache. If you or someone you know is having issues with the support you receive, DP or not, please get in touch. Together we can effect change for a more inclusive world. 🙂

Categories: Disability

Changing Places Awareness Day 2020

Today, 19/07/2020, is Changing Places Awareness Day in the UK and the government has announced that Changing Places toilets toilets will be mandatory in big public buildings in England and that 37 motorway stations will have Changing Places toilets installed. These toilets enable people who are hoisted or who cannot use standard disabled toilets to be able to relieve themselves in dignity and comfort with enough space for the equipment they need and also the people needed to assist.

image of a Changing Places toilet. Showing a toilet, grab bars, changing bench, shower, shower seat, a privacy screen, pull cord and a ceiling track hoist.
A Changing Places Toilet
(image copyright, changing-places.org)

The hoist means that the facilities in this toilet can be used by people who otherwise can’t transfer. The height adjustable bed provides a safe and clean surface for people who cannot use a toilet to lie down and the fact that it is height adjustable means the person/s assisting are not having to bend into awkward or painful positions to assist with toileting or changing the person they are with. There is even a shower so that an individual can get clean if needed, complete with privacy screen. The floor is designed to be waterproof and easy to clean. This is a great step forward in inclusivity but it is not wholly inclusive. I’m really pleased about the decisons made by the government today in regards to this as it means access and freedom to so many disabled people but I cannot use these toilets as there isn’t a static bar on a wall next to the toilet.

There’s a good reason for this. With the toilet in the middle of the floor there is plenty of room either side of the toilet for a CareGiver to be on each side of it, if someone is being hoisted two people can often be needed. This is also the reason there is plenty of space between all the equipment in the room. I’m not sure what the answer is to make Changing Places inclusive for all, my one idea is to make the grab bars on either side of the toilet longer. I could use the grab bars with assistance if the grab bar was long enough for me to put two hands on it while at a 90 degree angle to the toilet. I’ve yet to see any longer grab bars that fold up though. If they exist please let me know. Also I would like to hear how accessible Changing Places toilets are for you and if you’ve found the shower in them useful?

Thank you to everyone who has voted in my poll so far, if you haven’t please consider voting now! It’s anonymous and will really help me make this blog inclusive.

My COVID-19 experience post is coming this week so keep your eyes or your inbox peeled by following me. Simply scroll down to the bottom of this post or click on the appropriate icon to the right. I’m now on twitter!

Categories: Disability Tags: Tags:

Accessible Rooms And How To Make Them More Accessible

Due to a certain well known virus most of us aren’t going anywhere at the moment but I said I’d write this before the COVID-19 madness started and it occurred to me that the house arrest many are experiencing at the moment is a good opportunity to get organised for when we are able to travel.

 

Questions to ask before you book your accommodation.

I’ve found the best approach is to think about what would make your stay IMPOSSIBLE and then structure your questions around making sure the impossible can’t happen. The obvious one for a wheelchair user is steps. I always specify the exact thing I need or don’t need. Using the example of steps above the question I would ask is. Does your accommodation have any steps? The key word here is any. If they say no, I follow up with, none once inside? The reason for this is I have then often been told that the entrance has no steps but that the bathroom is split level. People tend to think about entrances when you ask any access question.

Blue Door Entrance

My Top 10 Questions:

1) Does your accommodation have any steps?

This is a deal breaker for me, unless there are lifts. Hotels often have alternative access but If I want to book a holiday cottage for example it has to be wheelchair accessible. Steps may not be a barrier for you. Your insurmountable barrier may be that you need your accommodation to have hearing loops etc. Personalise this top ten to your circumstances.

2) If there are steps are there lifts/ramps available to get to where I want to go?

I ask this because some people see in black and white and it might not occur to them that there are steps at the front but step free access at another entrance. Finding this out means I have more choice available of where to stay.

3) What are the width of your doorways?

This question is one I don’t have to ask as I’m lucky enough that my biggest piece of equipment, (My PowerChair,) fits through standard doorways but it is a close thing sometimes! To be safe, measure your chair from widest point to widest point. Then you can say I need doorways to be no narrower than xyz. Please note: if you have a piece of equipment bigger than a wheelchair, e.g a hoist, measure that instead. Bit obvious but still worth pointing out, you want the doorway/s to admit you and anything you might need.

4) Is there a wet room?

I need a wet room, as I can’t access a bath or any bathing setup that isn’t flat. Obviously you could change this to whatever set up you prefer.

5) Are there grab bars next to the toilet, fixed to the wall?

Again this is very specific to me. I cannot transfer without static bars that are fixed to the wall. Fold up ones lift up as I stand, I’d be there all day! You might need fold up bars or no bars so a side transfer is possible, or enough space around the toilet to use a hoist. If you’re able enough that a toilet is a toilet, then leave this out.

6) Is there a shower seat fixed to the wall?

This is the set up I find most accessible as I find hired shower chairs an expense and they are often too high for me to transfer into. There are companies that will lend you equipment and many deliver to your accommodation, for a fee of course. You may be wondering why this question didn’t follow the wet room question, If their isn’t a wet room I can’t stay there, ditto if I can’t access a toilet. Given that the specific’s of the shower area are saved until I’ve ascertained the bathroom and toilet space are accessible.

7) How high is the bed?

My biggest issue isn’t that I use a wheelchair it’s my height coupled with my disability. I’m 4.8ft, just short enough to make an already challenging transfer that much more difficult! I therefore need a low bed. You may need a high bed to make it easier to get out of it in the morning. It’s also worth asking if there is space under the bed itself. If you travel with a hoist or hire one the last thing you want to discover is that the hoist cannot get close enough to the bed!

8) Are the light switches near the bed?

If you’re like me you might need assistance in the night, sometimes however I just want to roll over and check the time without disturbing the person assisting me. If the light switch isn’t reachable from the bed this isn’t possible. It may sound trivial but I’m no good at routing around in the dark!

9) Do you have adjoining rooms?

This question is more for hotel rooms and the fact that I need assistance. If this doesn’t apply leave it out but if I need anything at stupid o’clock my family or my PA’s have the luxury of coming straight to me and not having the honour of traipsing a public area in their PJ’s! If sharing a property then this isn’t needed.


10) Can you email me pictures of the property/room type that I’m looking at booking please?

I will never go anywhere again without first seeing pictures of where I’m staying and the layout. Even after all the above things can be topsy turvy upon arrival. Even with the best will in the world people misunderstand and in some cases, give completely the wrong information. Prior to my stay in London I asked all above questions and received satisfactory answers. Upon arrival, the shower seat was secured by a portable seat which was hung over a static grab bar and was VERY shallow. I eventually got my money back as I had one shower over three days which nearly ended with me and my PA on the floor as the seat wasn’t stable! I will write a review of my stay there within the next couple of weeks. I did on this occasion request pictures but they weren’t clear and I took a chance. Businesses should be happy to provide clear images of either where your staying or a comparable room/building. If they are not, find somewhere more helpful who will accommodate you.

Clip Art of A Camera

Products To Make Accommodation More Accessible

Having found somewhere to visit and phoned the business to ask about access requirements it’s quite likely that the place you want to stay isn’t perfect and not as straightforward as it would be if you were in your own home. Instead of not going anywhere and staying home, (sound familiar?) there are products out there to make accessible rooms accessible to you?

Portable Hoist

Everybody is unique and because we are all unique our version of accessible is different. What works for one person may not work for another. Some people cannot manage without a hoist to transfer from A to B without a hoist. This doesn’t have to mean that travel is out of the question. If you are hoisted, chances are to save space and for convenience you have ceiling track throughout your home. Unfortunately this isn’t portable. There are however portable hoists available for purchase or hire. See the image below. If hiring a hoist you may want to check the dimensions with the company to check that it will fit through doorways.

hoist
Picture Of A Portable Hoist

Granted this isn’t small by any means but you can see that it does fold and can be moved about. For the purposes of this blog post all images are taken from mobility websites and I’m not endorsing any particular product just giving some idea of what’s available. If you use something that I haven’t included in this post. Please get in touch.

Patient Transfer Aids

If you don’t need a hoist but need some help transferring there are many aids available. You do need to be able to weight bear to use these.

Patient Turner
Patient Turner

A Patient Turner, like the picture above is a device that assists you to transfer without putting strain on the person helping you. Stand on the disc with knees against the pads, holding onto the bar at the top which you can also use to pull yourself up into a standing position and the patient turner can be wheeled short distances by your PA. Not sure how portable they are in practice but the top bar can be unscrewed for transport on most models.

Turntable

The image above is of a turntable, a more portable device then the patient turner. The disc turns around, enabling an individual to be assisted from A to B without having to struggle to move feet and turn around. Stand on the disc and with the help of someone else the movement to turn around is initiated, the disc turns around. This is what I use to get from my wheelchair to bed. By positioning my wheelchair next to the bed, disc on the floor, under my feet, I can stand, (with the help of my PA.) The disc turns and my legs go from being in front of my wheelchair to in front of the bed. A 90 degree turn has been achieved and all I have to do is stand, very portable.

Transfer/Bath Step

I use this because it is very rare that things like beds and chairs are low enough for me to transfer onto. This steps are study and non slip and add height for those of us who need a bit of help in that department. I use it together with the turntable above. The step I use is made up of different blocks so that you can add or takeaway layers as required. Very useful and in my case means I can stay in places where otherwise I would need a specialist bed that goes up and down.I use this because it is very rare that things like beds and chairs are low enough for me to transfer onto. This steps are study and non slip and add height for those of us who need a bit of help in that department. I use it together with the turntable above. The step I use is made up of different blocks so that you can add or takeaway layers as required. Very useful and in my case means I can stay in places where otherwise I would need a specialist bed that goes up and down.I use this because it is very rare that things like beds and chairs are low enough for me to transfer onto. This steps are study and non slip and add height for those of us who need a bit of help in that department. I use it together with the turntable above. The step I use is made up of different blocks so that you can add or takeaway layers as required. Very useful and in my case means I can stay in places where otherwise I would need a specialist bed that goes up and down.

Transfer/Bath Step
Transfer/Bath Step

Blocks

These blocks come in different heights and in rectangle, square or round shapes. They can be used to make furniture higher, either for transfers or so a hoist can be slid under, e.g a bed. Hotel staff if asked will position the feet for you but the bed, chair, etc do have to have feet of their own that can be encompassed by the blocks. Again it is something simple that turns the inaccessible accessible. Many are also stackable for storage.

Portable Ramps

Depending on what steps and access is available a portable ramp may be a good investment. These can be expensive, but if you’re patient some good bargins can be found online. I brought a 3ft ramp off ebay last year for £15. It lives in my car boot so I have it with me should I need it.

Picture Of A Portable Ramp
Picture Of A Portable Ramp

Grab Bars

If grab bars are important to you but they have to be in a certain place suction grab bars can make the difference between not being able to stay somewhere and managing. They need to be fixed to the wall you choose by someone with a lot of strengh and having done so, weight should be put through the bar by someone who can cope if the bar falls off the wall. Only then should the person requiring the bar, start to use it. Prices start from under £10 to over £100. Some are better at sticking to walls than others. The ones I use are called Mobeli and I will post a review if people are interested.

Grab Bar
Grab Bar

Shower Seats

If you need something to sit on whilst in the shower there are plenty of portable options, like the one below. However you do need a degree of balance which I don’t possess. That’s why I always ask if a shower has a seat attached to the wall as then I can lean back on the wall for balance and affix a portable grab bar next to me for me to hold onto to. I use a wheeled shower chair at home but it’s definitely not portable. There are also stools foldable and not which take up less room in the car but have no back.

Portable shower seat
Portable Shower Seat

I hope you have enjoyed reading this post and are inspired to begin planning your trips away, ready for when this crisis is over. For now take care of yourselves, stay home and Stay safe.

Look out for my post: Things to keep you entertained while self isolating

Categories: Disability Tags: Tags: ,

Round and Round We Go…

This is not the accessible rooms post I promised, I’m working on it but somehow when I sat down to write it, this happened instead. Thank you for all the comments on my last post, it’s comforting and encouraging to know that I’m not the only experiencing what I’m going through.

Smiley face, thumbs up!

The main reason I’m writing this is because I’m stuck in a loop, a loop that I can’t get out of and I wondered if any of you readers out there have successfully navigated the system enough to give me advice? I have been on the phone all morning to DWP enquiring about Severe Disability Premium benefit. I was advised by the support service I contacted to help me find work that I should have this. I’d never heard of it, have you?

Woman with hands up, looking confused.

Apparently if you have certain needs and are receiving certain benefits you are entitled to this benefit also. After speaking to the DWP though I was told that I’m not entitled because I have savings over £6,000 and I live with my parent’s who aren’t on any benefits.

All this is ok as far as it goes but I was also advised by my support service that because of my needs, working full time would probably impact negatively on my benefits and I could be expected to pay for the entirety of my care package, the care package that still hasn’t been agreed on and no progress seems to have happened since December!

Please don’t get the wrong idea I want to pay for myself, I don’t want to be a burden on society. My plan was and still is to work but how can I when society seems designed to have me sitting at home, wilting from bordom? I know people with care needs do work and have care packages that give them choice and freedom. What I can’t work out is how? I’m on a roundabout that has been going around and around the same issues continuously for five years and I’m just not getting anywhere! The person I spoke to at DWP also pointed out that now I’m volunteering for two hours a week I have to fill in a form whenever I start any work paid or unpaid.

Black and white roundabout.

I’m helping to create an access map of the Jewellery Quarter in Birmingham so that access to the many museum’s and heritage sites of this area of more accessible for disabled people. Currently it’s just information on the access that’s already available but the hope is that the museums will get involved in improving there access so that more people can access these interesting places.

Many hands in a circle.

I appreciate any thoughts/comments that you have. My post on accessible rooms will hopefully be up next week.

Should I continue writing about my life or just stick to my ideas and reviews? Let me know here.

Categories: Disability Tags: Tags: , ,

What Independence Means To Me

Happy New Year to you all. We’re nearly at the end of January now and many of you will be unsurprised to learn that since my OT assessment on the tenth of December 2019, nothing else has happened in regards to my Direct Payment request.

Since publishing my last post my PA had to leave her job due to health reasons. I mentioned this on the day of my assessment as the OT wanted to speak to the people involved in my care. Within two days my Social Worker emailed me to say the Direct Payments Team were enquiring whether my payments should be suspended as I no longer have any carers! To say this response upset me is an understatement and I feel that this demonstates perfectly what is wrong with the current system. Instead of being offered support to find a replacement my need for the resources I already had were being questioned! To be fair my Social Worker is really trying to help and once I explained that I needed the money available to be able to employ replacements, not to mention HMRC, they decided things could be left as they are. Do I expect too much in thinking that that should’ve been obvious without me pointing it out? These budgets are hard won and everyone I know would gladly give up the money for care in exchange for not actually needing it in the first place.

This struggle is what inspired me to start this blog as I know I’m not the only one. I’ve been fighting for my independence for the last ten years and the fight is wearing thin and taking it’s toll. Independence for me means being able to live without the assistance of my parents, the dream is to be able to do everything for myself without outside help, not currently realistic or feesible. I know this as I attempted to live by myself with no care package apart from to assist me to shower. My plan was to get around the need for care by installing ceiling track hoists all over my flat and hoisting myself everywhere. A good plan in theory, brought on by my determination to have choice and control. What it actually meant was that I was exhausted by the time I was out of bed in the morning and even if I had the energy to go out I could only leave my flat for a couple of hours as my toilet was the only one I could use without help. My back also decided it wasn’t happy with what I was doing and by the time I moved back in with my parents, fourteen months later, I could barely sit up in my wheelchair and had to undergo over six months of physiotherapy to get me somewhere close to my normal functionality. I have permanently hurt my back and my neck struggling as I did but I’m glad I tried. Without doing that I would never have discovered my limits, even if those limits have been increased by my actions. I’m not advocating that people push themselves to the limit but for me, at the time it was the right choice.

I still find the idea of needing someone with me restrictive and would rather do things myself. When going through care assessments I always find the process demeaning and I’d be interested to know if others feel the same or if I’m being overly negative. The OT who visited seemed convinced that she could teach me to transfer myself with no support, given enough time. Trying to keep calm, I commented that if she could do that then I’d buy her a box of chocolates and happily take a reduction in care money rather than asking for more. Why do people look and see more ability than is there. I had enough motivation growing up to become self sufficient if it were possible but somehow people think I’ve just missed a trick, that I actually can do things, I just don’t know how. Am I alone in this?

There are many concepts that have been developed to increase the independence of ‘disabled’ people. Most focus on lack of leg and feet functionality but assume the rest works as it should. A good example is the video below that’s been appearing on Facebook for a number of years.

Video of a Wheelchair Concept

Starting with the positives of the video, it’s great that people are thinking about access and recognise that barriers exist. The height of things, travelling and steps are very real obstacles that disabled people who use a wheelchair face. However can you spot the first problem with this concept?

…How many of you go to bed fully dressed and ready for the day? How many of you can roll, either at all, or whilst keeping your body in a perfectly straight line? I don’t go to bed with my clothes on and when I roll my head sometimes end up on one side and my legs in another direction entirely! Ok, so I’m nitpicking and personal care isn’t really addressed in these types of things but if the chair was made, how would the owner get up, go to the bathroom and get ready for the day? A feature of the chair is obviously it lays flat for easy transfers but how are seated transfers catered for?

Hoists are great pieces of technology and mean that people can be transferred safely but even portable hoists aren’t very portable and certainly not designed for the user to use independently. If a person is hoisted then when they are away from the hoist and or the people who operate it they are suddenly stuck. I hope to help create a solution that is portable and can be used by the user. The problem with this of course is that very rarely does one size fit all. I’m nowhere near creating anything yet but I have ideas and I’m hoping that people reading this will want to get involved and bounce ideas around. Every wheelchair started off as a concept and we now have chairs that can climb stairs, abeit in a very wobbly way and chairs that can stand people up so why not a chair that can transfer someone from A to B?

These are my ideas of independence, what are yours?

Categories: Disability Tags: Tags: ,

Nine Months on…

Photo of Me and Lee Rigby after his show in Solihull

You don’t have to be a rocket scientist to work out that my first post was written in March and it is now December! No I didn’t have a baby but life did get in the way!

My original plan was to get this blog up and running in time to write up my impressions of Naidex. Naidex is one of, if not the biggest disability show of the year, showcasing products, services, advice and a healthy dose of inspiration for disabled people. Obviously this didn’t happen and the main reason is that I had to learn how to fix wordpress before I could use it, alongside ‘requesting’ an increase in my Direct Payments from Social Services. Many of you know how relaxing that is! I have managed to have some fun along the way and thought I would give you a quick summary of what I’ve been up to over the past months.

Smart Independence

If you can’t find a product that meets your needs then there is help out there. We all know disability equipment is expensive and a company called Remap will adapt what you already have or in some circumstances, create a new solution for you. I contacted them to help me adapt my standing chair so that I could transfer into it more easily. Also, on the subject of access, I had smart lighting and heating installed along with a Gerberit wash and dry toilet in my flat. These things will help me be more comfortable and independent in my own home.

Cars and Wheelchairs

This year was also the year that my Motability car lease was up so I was kept busy researching car models that would fit me and my life in it for the next three years. I eventually chose a Fiat Doblo, passenger upfront conversion. I also received my new TDX SP2 wheelchair from Birmingham Wheelchair Services. I now have two working power chairs, a month ago I didn’t have any as my privately brought, Powerchair, decided it needed repairing. In my experience support and equipment are like buses. You wait ages hoping for an appointment and or a piece of equipment and then everything happens at once! I’m not complaining, it feels great to know I now have a back up chair should things go pear shaped. I’d love to hear of your own experiences.

Theatre fun

I visit my local theatre, Birmingham Hippodrome, at least twice a month. I love going to the theatre, it’s accessible and fun. Look out for more posts about my theatre adventures 🙂 I’ve seen a lot of productions in the past nine months including Kinky Boots and Hamilton.

So…

As you see it’s been a busy time. I’m planning on updating regularly from now on. I have my OT assessment on the 10th December in connection with my Direct Payment budget request. Wish me luck!

Disability

Under this section, I will write about my life, living with Cerebral Palsy. This will encompass anything and everything. From services I have used, my experiences and everything in between. There will sometimes be a crossover between this and the reviews section but posts written under reviews will cover a specific place, event or piece of equipment. This disability section is where I will write about everything else and hope to have discussions with my readers along the way.

Categories: Disability Tags: Tags: ,
error

Enjoy this blog? Please spread the word :)